Evaluate role-aware routing of end-of-life health data

Determine whether explicit, editable, and reversible role-aware routing can appropriately distribute end-of-life health-data outputs among patients, caregivers, and clinicians while preserving patient access and avoiding illegitimate authority transfers or additional coordination burdens.

Background

Participants described situations in which family members or clinicians had assumed responsibility for medication or care decisions while systems continued addressing the patient as the expected actor. In response, the paper proposes role-aware routing in which the same event could be presented differently to the patient, caregiver, and clinician according to an explicit decision-specific role specification.

Because caregivers were not interviewed, the study does not establish caregivers’ preferred roles, willingness to assume additional work, or how such routing would affect feasibility and responsibility. The authors therefore identify role-aware routing as an unresolved design hypothesis requiring caregiver-inclusive interviews and participatory evaluation.